Update #1
Feb 13, 2023
Progress Towards Our Goals
Met with several CF experts, including our mentor Dr. Jayakar Nayak, Esmond Tsai, and Milan’s Yale interviewer, Adam Galper, who is a member of the Cystic Fibrosis Foundation and has two children with CF.
Created a website and a loading page for our app and designed/chose our logo and name.
Planned out the rough features of the app and created a wireframe for our first couple of screens.
Researched questions for our symptom questionnaire used to assess how a patient is performing, and have started creating a model to standardize symptom logging across users.
Researched the standard medications for CF and other people to interview.
Planned a to-do list for the next few weeks (with some further deadlines included).
Completed our Networking 101 worksheet.
This is a screenshot of our task/issue management system in Linear.
Here is a photo of the whiteboard after our first wireframing session.
Goals for the Next Two Weeks
Our goals for the next two weeks are to continue developing in Figma and to create a prototype of some pages in the front end for at least one of the three functions (symptom tracking, medication logging, or managing past health data). We also plan to meet with Dr. Nayak and (hopefully) several nurses and patients to better gauge the needs of each CF patient. Additionally, Milan will shadow in the clinic on a day when there is no school so he can talk with otolaryngologists about how CF is best managed.
Changes to Our Project
We initially wanted an accessibility-first resource page to be a key part of our app, but we have since moved it to the back burner to focus on the more dynamic features to help patients. We are now prioritizing symptom management with a questionnaire platform and medication tracking, but accessibility will remain at the forefront of our development.
We’ve also decided to create a complementary physical product to accompany the Fibrosity app: an interactive bracelet. This device will open an emergency medical identification card/treatment for patients when tapped against NFC-enabled smartphones to allow pediatric CF patients to discreetly keep their essential treatment information close at hand (especially at school).
Upcoming Issues or Risks
We will likely have to collaborate with Stanford Legal to begin patient interviews since some medical information may be released in the process. Carefully scribing the interview by hand may mitigate any concerns with documenting the discussion.
We also have a break from school upcoming but plan to work independently on the smaller tasks to keep making progress on our app’s prototype. Creating each screen of the application will take several hours (we currently plan to have 50-75 total screens), so working to delegate the load between the two of us is imperative.